Please... sign petition to improve circumstances for patients in The Netherlands
Dear friends, fellow patients and advocates,
We need your help.
I don't know exactly how to explain how far Europe is still behind. Not only is current research not sufficiently exposed in the media, even many patients still do not know there even MIGHT be a biomedical cause for their illness. They do not know there have been many research projects already.
Entire countries have been indoctrinated into the psychological beliefs and it will take quite an effort to change this around. But it WILL pay off, by increasing awareness around the world more funds will become available for biomedical research. (your motivation to sign...)
We hope and pray that research trials will be accessible in all countries soon, we hope for another press release by WPI or an international Health Organization and for advocacy to further unite.
In the mean while we are doing what we can to gather news, translate information and write to our press and governments. With a few people we have composed a petition to help improve the situation for patients in The Netherlands. (Diagnose Support is not bound to one country but we can only setup a petition in the country we reside).
Please follow Marly, Carlos and Mike as our international signers and put in the effort to sign our petition too. Instructions in English to guide you through the Dutch text (and the TWO steps in the proces) and a google-translation can be found at our website.
Email me if you can't make it work. Feel free to forward this message in your network.
Thank you for your time,
Carla, Diagnose Support
Petition: http://www.petities.nl/petitie/erkenning_van_en_biomedisch_onderzoek_naar_neuroimmuun_ziekten/
Translation: http://diagnosesupport.com/main/content/blogcategory/118/162/
Instructions: http://diagnosesupport.com/main/content/view/200/162/
We need your help.
I don't know exactly how to explain how far Europe is still behind. Not only is current research not sufficiently exposed in the media, even many patients still do not know there even MIGHT be a biomedical cause for their illness. They do not know there have been many research projects already.
Entire countries have been indoctrinated into the psychological beliefs and it will take quite an effort to change this around. But it WILL pay off, by increasing awareness around the world more funds will become available for biomedical research. (your motivation to sign...)
We hope and pray that research trials will be accessible in all countries soon, we hope for another press release by WPI or an international Health Organization and for advocacy to further unite.
In the mean while we are doing what we can to gather news, translate information and write to our press and governments. With a few people we have composed a petition to help improve the situation for patients in The Netherlands. (Diagnose Support is not bound to one country but we can only setup a petition in the country we reside).
Please follow Marly, Carlos and Mike as our international signers and put in the effort to sign our petition too. Instructions in English to guide you through the Dutch text (and the TWO steps in the proces) and a google-translation can be found at our website.
Email me if you can't make it work. Feel free to forward this message in your network.
Thank you for your time,
Carla, Diagnose Support
Petition: http://www.petities.nl/pet
Translation: http://diagnosesupport.com
Instructions: http://diagnosesupport.com
Posted by BlueRibbonsForME at 12/4/2009 2:12 PM 
Categories: Petitions,Netherlands,ME/CFS
Tags: Petitions Netherlands ME/CFS
Categories: Petitions,Netherlands,ME/CFS
Tags: Petitions Netherlands ME/CFS
Following my very recent diagnosis of ME/CFS, I have set up a blog to help me cope and of course to communicate with other people in a similar situation.
Reply to this