ACT NOW ON CDC RESEARCH PLAN
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Tell planners that the status quo isn't good enough

Take Action! Visit this page:
http://capwiz.com/cfids/utr/1/LJHBKTPTTF/AOCGKTPTWY/3560606751]

For nearly two years, the CFIDS Association of America has been
working to effect a more robust research effort at CDC. In spite of
these diligent ongoing efforts, the past two years of dialogue and
public testimony has produced a 5-year draft plan from CDC that is
substantially the same as what CDC has been reporting since 2006.
Status quo. Groundhog day. Déjà vu. All over again.

In response to CDC's request for input on its draft plan (posted at
http://capwiz.com/cfids/utr/1/LJHBKTPTTF/JHVKKTPTWZ/3560606751), the
CFIDS Association has prepared a detailed
response, making both criticisms and recommendations for how one-half
of the nation's investment in CFS research will be spent through 2013.
Our letter is posted at
http://capwiz.com/cfids/utr/1/LJHBKTPTTF/AVKDKTPTXA/3560606751 for your
review. We have used many of CDC's public
reports to document the lack of progress and failure of the program's
leadership to meaningfully advance practice and prevention to improve
patients' lives.

To shift the dialogue and demonstrate a more united front of the
research, clinical and patient support communities against the status
quo, we invite you to "endorse" our letter by sending your
own message of support to CDC at CFSResearchPlan@cdc.gov or by
responding to this Action Alert!

The deadline for comments is Tuesday, June 30. CDC has committed to
keep its e-mail address functioning after this date, so even if you
can't act before June 30, please do so as soon as possible. Share this
message with friends and family and ask them to do the same.

$20 million spent over the next five years is hardly sufficient to
address the public health challenges that CFS presents, but it's too
much money to waste on a weak, ineffective CDC research plan.

K. Kimberly McCleary
President & CEO
The CFIDS Association of America